Reflections on Losing My Child, Part 6: The First Year

Black sand with wave pattern, featured image for "The First Year" at The Third Eve.

After Olivia died, my chest hurt and I felt heavy all over, as if my body was more than flesh, bone, and sinew. I questioned myself torturously, second-guessing everything I had done before and during her illness. In the weeks following her death, I found myself lost in cycles of “What if?” and “If only—.” They went through my mind like beads on a rosary, each one heavy with regret.

In the midst of grief and longings and regrets, I felt grateful. I was as overwhelmed by gratitude as I was by grief, thanking God daily that we’d been able to have Olivia at all. During that time, I was surprised to realize that I’d accept Olivia back at any cost and in any condition–even in a coma, even as a child needing total care. I loved to see her alive again, to feel her hand in mine, to smell the smell of her.

Though we had anticipated and prepared for Olivia’s death, we hadn’t allowed ourselves to imagine what life without her would be like. We went through life in slow motion during those first few months after her death. Everyone else in the world seemed happy, blessed, and sane. We suffered.


I read Kaddish, Leon Wiesenhalter’s book about mourning his father’s death. Wiesenhalter was a non-observant Jew whose grief compelled him to observe Jewish rituals of mourning, which required daily synagogue attendance and recitation of Kaddish, the traditional Jewish prayers of mourning. The reading was sometimes slow going because of all the rabbinical teachings; but the book was compelling.

While reading Wiesenhalter’s book, I found myself enraged with Martin Luther for the Protestant Reformation, because before the Reformation, the early Christian church followed many Jewish customs. We lost these thanks to Martin Luther, Zwingli, and the other Reformers. Though I had been a practicing Protestant for most of my Christian life, I mourned the devastating loss of ritual, especially rituals of mourning. The early Church, like Judaism and later Catholicism, once acknowledged grief with structure and time. But the modern Protestant is expected to bury a child and return to the world as if nothing has changed.

Yet everywhere else in life, we recognize the need for recovery. A new mother is granted rest and care—often twelve weeks of leave—to recover from birth. A patient who undergoes surgery is prescribed a period of healing. But when your child dies, there’s no official space for rest, no sanctioned time to grieve. You’re expected to carry on, as if the deepest wound of your life should heal without a pause, ritual, or witness.

In the absence of communal mourning, the bereaved are left to improvise their own scaffolding. Where once there were prayers, periods of withdrawal, designated clothing, and meals brought for weeks, we now have therapy sessions and grief support groups—modern constructs trying to fill a space once held by faith and ritual. I hadn’t yet found such a group, but I already sensed what had been taken: the right to grieve openly, and the collective responsibility to bear witness.


For months after my Olivia died, every day I woke up feeling heaviness and chest pain. Tears dithered behind my eyes constantly.
I was terrified of losing another child. Some people—even family members and old friends—avoided us. It seemed that we were allowed a week or two grace period, after which we were expected to return to our normal strength. Death had birthed us into a caste of undesirables, and our isolation was great.

I constantly felt a tender ache of longing for my missing child. The finality of death was stunning and cruel, something I hadn’t expected to experience so bitterly, for I was a Christian with every hope in an afterlife.

I felt Olivia nearby, as if I might find her in the next room or catch a glimpse of her rounding a corner.

I wasn’t in my right mind. I had taken a break from work on my
Master of Arts in Literature, and one day received a paper back that
I didn’t remember writing. And yet, there it was in my hand, marked “A,” and dated two weeks after my daughter’s death. I stood there dumbly, looking at the red “A,” feeling crazy.

My children dreamed of their sister as a radian, light-filled presence; I dreamed only of Olivia, ill and fading. Two months after she died, we took apart her bed, and I wept for hours afterward. By that time, I carried a million cherished memories of her, alongside a handful of painful moments—and an overwhelming tide of regrets.


I joined a grief support group at a local church three or four months after Olivia’s death. The group was led by a social worker who had lost her only son in Vietnam and whose husband had died of cancer. She frequently pressed group members with probing questions, especially those who were newly bereaved. It felt as though she measured grief on a personal scale, granting more sympathy to some losses while dismissing others as overly sentimental. She embodied the kind of professional whose own unresolved grief colors their approach to those they’re meant to help.

After six weeks, I left the group and sought out a local psychoanalyst for support. My grief felt too precious and private to be dissected in a church setting. While I lacked the strength to hold that social worker accountable, her influence lingered: she showed me I had the power to protect myself and to keep searching until I found the help I truly needed. Before Olivia’s death, I had no idea how I’d respond to such a profound loss. Now I understood that even amid immense suffering, part of me would remain my true self.


Life went on, and there was something soothing—almost medicinal—about schedules and routines. Eight months after Olivia’s death, her birthday arrived. I made a photo album of my favorite photographs and mailed it to her birth mother. My heart ached for hours afterward. I like I couldn’t breathe, as if the grief itself might crush me.

There was constant pain, constant guilt, and constant relief—the pain of missing Olivia, the relief of no longer having to provide constant care, and the guilt over feeling that relief.
How had I managed it while she was alive? Looking back, I couldn’t understand how I’d done it.

The one-year anniversary of her death came and went, but not without force. For all the years I had taught and talked about anniversary reactions as a psychotherapist, I had never understood their power on a personal basis. All of the same feelings I had during the 24 hours of Olivia’s dying and death returned in full.

Later, in quiet reflection, I could see how Love had carried and sustained me. I was not bitter. I was not full of self-pity. I had not used Olivia’s death as a weapon or a shield. Her life had always challenged people—exposing their assumptions and stirring their discomforts.1 Her death only magnified this for others. But for me, she was, and would always be, my beloved child.

Losing Olivia shook me to my emotional, psychological, and spiritual core. But I had come through it, changed and refined.

  1. In depth psychology, we speak of some such discomforts or assumptions as possible complexes or neurotic tendencies. ↩︎

12 responses to “Reflections on Losing My Child, Part 6: The First Year”

  1. Eve Avatar

    Mei-Ling, I look forward to hearing from you in any form, because you’ve lost a lot and you are my sister in suffering–even though our suffering is different.

    Shirley, yes, you’re so right… we don’t know what to do or say. I know I didn’t know, and all too often before Olivia’s death was guilty of the same behaviors myself. I know better, now.

    The friend who was the biggest support to us during our loss was one who had lost her own father the year before after a lengthy illness. This is the only way she knew what to do. Before Olivia’s death, I remember being afraid of going around those who were recently bereaved. Now, of course, I’m not.

  2. Mei-Ling Avatar
    Mei-Ling

    It seems strange to be thanking you for sharing what is obviously an extremely painful experience. I don’t think words can convey what I actually want to say.

    I’m not sure how to express this without turning it into a post “about myself”, and I don’t want you to get that impression. And of course, I don’t want to ramble on.

    So what I will do is… I will thank you for sharing this, for giving me (us) a glimpse of what it’s like – despite the pain and grief. I know a “Thank you” may seem awfully meagre, but it’s better than staying silent and letting you think I haven’t read your blog posts lately.

    And I will send you an e-mail later today because there’s something else I think you should know, and your post about Olivia has really made me reflect on what loss is about.

  3. helenl Avatar

    I’m still reading and learning, Eve. I await your article on crying while writing. I will have something to say about that. But I won’t say until you post.

    I haven’t lost a child but I do identify with the “first year” after losing a parent and -in law.

  4. henitsirk Avatar

    Sometimes I think we need to reclaim some of the old ways — not in an unconscious way of simply following tradition, but in a conscious recognition of their value. Like the 40 days a mother stays home with her newborn baby. Or the traditions around death that you describe. I’ve always wanted to do an ancestor corner for All Souls Day. Maybe this year I will.

    I’m not surprised that schedules and routines were soothing for you. Rudolf Steiner said, “Rhythm replaces strength,” which I have found to be true in so many ways. Children need rhythms because they can’t develop inner strength and a feeling of security without them. I can see how that would apply to grief as well, allowing you to function on a basic level just from habit.

    I haven’t had anyone close to me die, so I can relate to the feeling of being uncomfortable and not knowing what to say to a bereaved person. I would probably fall back on the practical, bringing meals and such. I think people (me included) forget to rely on basic compassion to guide them in the moment, and to think about the other person instead of our own discomfort.

  5. Eve Avatar

    Karen. I was shocked to the bone to see you post here. You were such a good friend to us. I’ve been so absent. I’ve been thinking about you constantly lately, but feeling so changed since that time that I haven’t called or done anything.

    You have a knack for finding people when they are having transformative experiences. ;o)

    When I think of “Christian,” I think of you, my friend. I’m humbled and grateful every single time I think of you. You did what nobody else seemed to know to do, which was to simply just be there.

  6. Karen Avatar
    Karen

    Eve, I don’t know what to say to your kind post…whatever good you have received from our friendship and has been my pleasure to pass along by the grace of God.

    Give me a call. XO

  7. Karen Avatar
    Karen

    Eve, I think of you and of Olivia every August. I’m not surprised that it’s taken this long to write about her death; how can we open that much pain up to be scrutinized?

    I’ve often wondered if sharing my pain with others who didn’t understand (or weren’t sympathetic) would cheapen the gift of grief. I’ve concluded that it’s more important to let others learn what God is willing to do in our lives through the losses we suffer.

    Thanks for letting me relive that time with Olivia and your family. I’ve missed her, too.

  8. Eve Avatar

    David, I pity your uncle. It must be painful for him to have, on some unperceived level, his own dormant grief disturbed by those around him who are conscious of their loss.

    I’ve been thinking about how western culture has grown so dead to so much (and don’t get me started on the oh-so-sensible Protestant Reformation again!). I recall judging Catholics and other religions who seemed so superstitious and pagan, lighting candles and saying masses for the dead (ugh!); or how about those goofy Buddhists or Hindu folks, keeping family shrines right in the center of their homes, lighting incense, bowing to the ancestors, and even having the bones of their ancestors inside the household shrine? Or those Korean people, having picnics on the graves of their ancestors? Wow, how pagan can one be?

    Yes, when I was younger I thought that way, sometimes. However, the deeper, symbolic mysteries were always there, too, beckoning for me to dash myself against their rocks. And so I finally did. Now I wonder at how spiritually ill American westerners must truly be, when we expect ourselves to snap out of it, whatever “it” is, within one or two weeks (usually two, I think) of a major trauma. We move on, just as from one major news story to another. When the story stops being compelling, stops making our hearts race, we stop paying attention. It’s over.

  9. David Avatar
    David

    This continues to be an amazing series of posts, so important, so profoundly important, that if I could stop every single person I see on the street and force them to read and understand this writing, I could do it.

    The way our society treats grief and loss is so unnatural, and so unkind. A cousin of mine in Canada died of a brain tumor about three years ago, after a horrifying struggle, and it really hurt me to see that my uncle, her father, expected my aunt to be “done” with grieving after a couple of weeks. It just … damn. It’s so cowardly. When I write to her, which I do sometimes, I make a point to mention that I still think about Dianne. Maybe that’s a bad idea. Maybe it reminds her too much that Dianne is gone. I don’t think so, though. I hope it reminds her that Dianne lived, and that she was precious while she was here.

  10. Eve Avatar

    Deb, oh, I thank you for your honesty, and for underscoring just how difficult and heart-breaking and wonderful, all at once, it is to have a handicapped child. Because we adopted Olivia, we chose to raise a child with disabilities; this relieved us, I think, only of any guilt we might have had about how we managed to have a child with disabilities. That was the only difference I’ve been able to perceive between us as adoptive parents, and parents who give birth to children with challenges.

    Several people said, “she’s better off,” and “at least you don’t have the burden of her care any more” after Olivia died. Caring for her was complicated. She was paralyzed from the chest down, so had to be lifted and needed a great deal of physical help. The school classified her as EMH, so never really learned to read and write well; but she was good at math, and a genius socially. Nobody who met her could tell that she was EMH because her astounding social graces. She was joyful and not given to many moods.

    When we adopted Olivia, we thought she was physically challenged, not mentally, as she was barely two years old and seemed cognitively on track. We had dreams of all she would do in the future, as an adult. Maybe she’d become a social worker or teacher. But when she was about four or five years old, we were told that she had intellectual disability. We grieved and adjusted.

    You said you cry while you write; one doesn’t really ever “heal,” does one? I don’t think we do. I think we build something around a wound that may heal partially, but is always tender. I’m reminded of Jacob wrestling with the angel, but walking with a limp the rest of his life. There are always griefs. There’s always the void of the person who’s gone, even if that person is the imaginary “what might have been.” We see how other people’s lives work and we wonder why ours weren’t allowed to work that way.

  11. deb Avatar

    My daughter didn’t die but my dream child died when the doctor told me Katie was handicapped. I remember everything was a blur for a long time. Everything hurt, I felt everyone’s pain, it was like I had no skin, no barrier between me and the rest of the world. This went on for a long time but about two or three months after Katie was diagnosed I went back to see my daughter and she told me I was depressed because I had been grieving for longer than two weeks.

    Who came up with two weeks? It took me years to stop wishing for something different, to stop crying, although I’m crying as I write this. It took a long time and through it all I had a real live daughter who needed to be cared for, thankfully. I think she kept me alive for years. Without her I might just have laid down and never gotten up again. It hurt that much.

    When Katie was around a year old, maybe a bit older, we were involved in a group at the hospital. It was a group of parents and their disabled children. One of the children died about two thirds through our time there and I remember thinking, how come those parents are so lucky? Their child died and mine’s still alive.

    I’m thankful now for Katie but it took a long time to see her as a gift and not a burden. I don’t think I’ve said much about you and what happened to you and Olivia but when I read your story, all of this started coming back up. I’m sorry for your loss and all your grief and thank you for letting me tell you my story here. Take care.

  12. Shirley Avatar

    Eve, unfortunately it is not uncommon for friends and even family to avoid one who has suffered such loss. Often a reason is offered: we didn’t know what to say nor how to act, and thus the hurting family is denied the mere presence or hand-holding of dear ones.

    What a shame. Perhaps your post will give us all greater courage to be near those who are suffering.

    Thank you.

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